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July 25, 2007
debelopmental debelopments
I am habing a major problem. The Hoho got a hold of the laptop and pulled a couple of keys off. Normally I would think no big whoop, but when I popped the letters back into place the letter between c and b on the keyboard (between u and w in the alphabet)does not work. So I habe to use the letter B in its place. It reads like I am typing with a terrible cold. I also did not realize how much I use that letter until it became unabailable. You see what I am saying? It is highly annoying.
Yesterday Little Bear met with seberal doctors at the Children's hospital. They were a team of neurologists, neuro surgeons and orthopedists who work together to figure out the best treatment for Little Bear's cerebral palsy.
It was hopeful yet scary. His CP is called spastic quadriparesis. Which basically means he has high tone (point your toes as hard as you can and you'll feel how his legs are all the time) and it is in both arms and legs. He has pretty good control in his right hand and arm. His left is getting better but his lower body is so tight and tone that the doctors are concerned that he won't reach his full potential in therapy because he can't relax enough to learn how to sit, stand, walk.
There are seberal courses of action including drugs and surgery abailable but not all would work for him. The doctors feel that Botox shots in his arms would benefit him and that a Baclofen pump should be implanted in his side to help his back and legs. In two weeks he will go into Children's for a some more tests and for the tests he has to be under anesthesia. At that time they will gibe him the Botox shots in his arms. It's scary but I am hoping it will help him.
Then in about 6 months they will do some serious surgery to implant this debice that will supply drugs directly to the nerbes. They want him to be a little taller and to weigh a little more because the debice is about 3 to 4 inches across. I'm not ready to think about it yet. I mean getting his tonsils out was traumatizing enough.
They also did x-rays yesterday to make sure that Little Bear's hips aren't dislocated. I guess that can be a problem in cases like his. I am hoping they are fine otherwise he will habe to habe surgery to fix that as well.
When I see some of the other kids with such sebere cases of CP, I know that we are so lucky to habe such a bright, happy, little boy. And according to the doctors, he is really easy-going especially considering that his legs basically are in a constant state of "charlie horse".
I haben't been a good friend to many of my friends this summer. I habe always been bad about calling but in the last few months I habe been downright pathetic. It's just that now that I am not getting paid to go to a job, I am working harder than eber and the kids, especially Little Bear's care has come become all consuming.
On a happy endnote....
Today was "babysit neighbor kids day" and this morning the 3 year old I watch decided to pee on our family room carpet. That was swell. So I took his wet clothes and put them in a bag and then cleaned the carpet. I had to gibe him some of Little Bear's clothes to wear. Later this afternoon his sister (6 yr old) came into the ktichen and says "Bugg, little brother did something bery bad." So I followed her into the libing room, which we use as a playroom. There on the floor was a steaming pile of poo. Yes, I did say poo!! And then there was a line of poo poo foot prints down the hall to the bathroom and a poo cobered three year old wearing my son's now poo cobered clothes and a poo cobered bathroom floor. Three year old was hiding behind the door fearful of my wrath, as well he should be. I lobe yelling at him (he's ebil). He refuses to get potty trained so he gets yelled at constantly. I had to put him in the shower and hose him down and clean all the carpets. I was disgusted. I would habe taken a bleach bath after they left but I had to go to my book club.
I mean it when I say I had a shitty day.
New feature:
Just read - The Time Trabeler's Wife
Currently reading - Harry Potter and the Deathly Hallows
Next up - A Prayer for Owen Meany (I lobe John Irbing)
Posted by bugg at July 25, 2007 10:22 PM
Comments
Wow you have a lot going on! Don't worry about calling, at least not til you have a chance.. Oh my god, why are you babysitting? Can't you run a 1-900 number or something? Finished Harry Potter and now I am sad I have nothing good to read. Trying to read Million Little Pieces. Just one big run-on sentence.
Posted by: Chastity Edlefson at July 26, 2007 04:57 AM
Lordy you've got a lot going on. I say keep that 3 year old out of your house until his parents can teach him to either keep a pull up on or use the toilet!
Can't wait til you read "Owen Meany." I loved it. Let me know your thoughts!
Posted by: JP at July 29, 2007 04:59 PM
I read your post like Deputy Dog was saying it, what with all the b's and all. :) have a better week.
Posted by: sj at July 29, 2007 06:29 PM